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It takes a team to care for people living with familial chylomicronemia syndrome (FCS)

The physical, cognitive, and emotional symptoms of FCS dictate a multi-disciplinary approach to healthcare.22

The National Lipid Association recommends a team-based, collaborative approach to managing patients with lipid disorders, such as FCS.36 
Team-based healthcare has been defined as:

“…the provision of health services to individuals, families, and/or other communities by at least two health providers who work collaboratively with patients and their caregivers – to the extent preferred by each patient – to accomplish shared goals within and across settings to achieve coordinated, high-quality care.” 36

Collaborative, team-based care for lipid disorders may lead to improved adherence to recommendations, improved outcomes, and improved patient satisfaction since it can better address the range of issues presented by FCS,  from dietary adherence to emotional, physical, and cognitive symptoms.36

Symptoms reported by some patients living with FCS are outlined in the table below12,22:

physical symptoms

Acute pancreatitis

Generalized abdominal pain

Bloating

Asthenia

Indigestion

Fatigue

Dyspnea

Failure to thrive

Lipemia retinalis

Nausea and vomiting

Cognitive symptoms

Difficulty concentrating

Impaired judgment

Brain fog

Dementia

Memory impairment

emotional symptoms

Depression

Anxiety

Social withdrawal

Who should be on the team?

A collaborative multidisciplinary team may include (as necessary):

learn MORE about fcs and SHTG Resources >

REFERENCES

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